Relevance: primary · Type: background
Confidence100%
Breta Meria Conole was in a state psychiatric hospital for more than two decades.
Relevance: primary · Type: action
Confidence100%
Debby Hannigan, Conole’s great grandniece, tried for years to access Conole’s medical records because she believed they might hold clues to mental health issues in her family, including her oldest daughter’s depression.
Relevance: primary · Type: action
Confidence100%
Hannigan twice wrote to the state of New York requesting Conole’s records.
Relevance: supporting · Type: action
Confidence100%
In her second request, Hannigan included a supporting note from her daughter’s therapist stating that access to the records would help “to know their family medical history better.”
Relevance: primary · Type: event
Confidence100%
Both of Hannigan’s requests for Conole’s records were denied by the state of New York.
Relevance: supporting · Type: action
Confidence100%
Doug Clarke of Alfred, New York, tried unsuccessfully to obtain the psychiatric records of his great-grandfather.
Doug Clarke
Relevance: supporting · Type: quote
Confidence100%
“It really does piss me off that we couldn’t just say, ‘Hey, we’re the descendants, here’s the proof, now tell us what you know!’”
Doug Clarke
Relevance: supporting · Type: quote
Confidence100%
Clarke said the records might help explain the depression and bipolar syndrome seen in his generation of his family.
Relevance: supporting · Type: background
Confidence100%
In the 1800s, the U.S. experienced a boom in state institutions for the confinement of people with mental illness, and every state had at least one such institution by 1890.
Relevance: supporting · Type: background
Confidence100%
Admission reasons to 19th-century asylums included “brain fever,” “grief and anxiety,” “laziness,” “religious excitement,” and “desertion by husband,” according to historical records.
Relevance: supporting · Type: background
Confidence90%
Some asylums gained reputations as brutal, overcrowded warehouses where patients were neglected and restrained.
Relevance: supporting · Type: background
Confidence100%
In the 1900s, state psychiatric hospitals were settings for now-discredited treatments including lobotomies and induced comas.
Relevance: supporting · Type: background
Confidence100%
Staff at psychiatric hospitals often took extensive notes with detailed descriptions of patients and their symptoms, and also took photographs and collected other materials.
Laurence Guttmacher, former clinical director of Rochester Psychiatric Center
Relevance: supporting · Type: quote
Confidence100%
“We had this incredibly rich trove of records” at the Rochester Psychiatric Center.
Laurence Guttmacher, former clinical director of Rochester Psychiatric Center
Relevance: supporting · Type: quote
Confidence100%
Dr. Laurence Guttmacher said records at some facilities were likely damaged, destroyed, or lost over time, and surviving documents may not be well organized or cataloged.
Laurence Guttmacher, former clinical director of Rochester Psychiatric Center
Relevance: supporting · Type: quote
Confidence100%
Guttmacher said a lot of information from psychiatric hospital records still exists.
Christine Moutier, chief medical officer for the American Foundation for Suicide Prevention
Relevance: supporting · Type: quote
Confidence100%
“Would you want to know if your grandfather died of a heart attack? It’s information that you can use to understand how vigilant to be.”
Relevance: supporting · Type: background
Confidence90%
An untold number of patients died at state hospitals, and some were buried in unmarked graves.
Relevance: supporting · Type: action
Confidence100%
Alexandra Lord, a historian writing a book about suicide in her family, struggled to gain access to New York state records about her great-grandmother.
Alexandra Lord, historian
Relevance: supporting · Type: quote
Confidence100%
Lord said some families have not been able to establish when a relative died, let alone how.
Laurence Guttmacher, former clinical director of Rochester Psychiatric Center
Relevance: supporting · Type: quote
Confidence100%
Guttmacher said he received about two requests per month from family members seeking access to records to learn their family stories.
Relevance: primary · Type: event
Confidence100%
State officials told Guttmacher he could not release psychiatric records to family members.
Relevance: primary · Type: background
Confidence100%
A federal law enacted in 1996, known as HIPAA, protects the privacy of each patient’s health information, including diagnosed conditions and care received, for 50 years after the patient’s death.
Relevance: supporting · Type: background
Confidence100%
Ohio law allows the closest living relative of a deceased patient to request information from state mental health facility records, and allows anyone to request records 50 years after a patient’s death.
Relevance: supporting · Type: background
Confidence100%
Maine offers fairly easy access to mental health records dating back at least 50 years.
Relevance: primary · Type: background
Confidence100%
New York allows psychiatric records to remain sealed “in perpetuity,” according to a statement from New York’s Office of Mental Health.
Relevance: primary · Type: background
Confidence100%
New York releases psychiatric records to patients and their immediate family members, but generally not to more distant descendants.
Relevance: supporting · Type: background
Confidence100%
New York has released psychiatric records to medical professionals “with a justification” and to historians who agree not to name individual patients.
Relevance: supporting · Type: background
Confidence100%
Massachusetts previously restricted access to psychiatric records but enacted a new law last year making public state hospital records that are at least 75 years old or for individuals dead at least 50 years.
Relevance: supporting · Type: background
Confidence100%
The Massachusetts law change followed a commission report that discussed the state institutions’ history of abuse and neglect, including patient sterilizations at a state hospital in Monson.
Alex Green, commission member
Relevance: supporting · Type: quote
Confidence100%
Alex Green, a member of the Massachusetts commission, suggested the state’s prior nondisclosure of records amounted to a “cover-up” of decades of abuse endured by disabled people.
Relevance: primary · Type: action
Confidence100%
In 2026, New York state Sen. Pat Fahy introduced a bill that would designate psychiatric records of patients deceased for 50 years or longer as historic records, no longer subject to privacy protections.
Pat Fahy, New York state senator
Relevance: supporting · Type: quote
Confidence100%
Fahy cited the Willowbrook State School on Staten Island, where developmentally disabled children lived in deplorable conditions, as part of New York’s troubled history with psychiatric facilities.
Pat Fahy, New York state senator
Relevance: primary · Type: quote
Confidence100%
“If the person is deceased, there should be an availability of these records to help give the family closure. Learning from our history is one of the best ways to give us insight into how we do better in the future.”
Relevance: supporting · Type: background
Confidence100%
Online services such as Ancestry.com provide access to old census records that may indicate if someone was in a state institution at the time of the census.
Relevance: supporting · Type: background
Confidence100%
Veterans’ military pension files have contained details about a person’s mental health.
Relevance: supporting · Type: background
Confidence100%
Old newspapers often published information about residents, including when people were sent to state institutions.
Relevance: supporting · Type: background
Confidence100%
In the 1950s, more than 500,000 people were in state psychiatric hospitals at the peak of institutionalization in America.
Ryan Thibodeau, researcher at St. John Fisher University
Relevance: supporting · Type: quote
Confidence100%
Ryan Thibodeau, a researcher at St. John Fisher University involved in the push to change New York’s law, said descendants of institutionalized individuals “are everywhere.”
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