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Janine Roebuck is a 72-year-old opera singer from London.
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Janine Roebuck had double cochlear implants fitted to restore her hearing.
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Under current guidelines from the National Institute for Health and Care Excellence, most deaf adults in the UK are eligible for only one cochlear implant.
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The guidelines from the National Institute for Health and Care Excellence are based on analysis suggesting that offering two cochlear implants is not cost effective for the NHS and a lack of evidence in the area.
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The National Institute for Health and Care Research is backing a study into two implants for adults led by Addenbrooke’s Hospital and the University of Cambridge.
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The National Institute for Health and Care Research receives government funding.
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Janine Roebuck suffers from inherited sensorineural hearing loss.
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Sensorineural hearing loss accounts for about 70% of all genetic hearing loss cases.
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Janine Roebuck’s family has experienced sensorineural hearing loss for multiple generations.
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In 2019, Janine Roebuck underwent cochlear implant surgery on the NHS for one ear and paid privately to have the other ear done at the same time.
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Janine Roebuck hid her deteriorating hearing for more than 30 years.
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Janine Roebuck performed in operas, operettas, and musicals at venues including the Royal Opera House in London.
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Janine Roebuck has retired from performing.
Janine Roebuck, opera singer
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"The best thing I’ve ever done in my life."
Janine Roebuck, opera singer
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"Having two implants is light years away from just one."
Janine Roebuck, opera singer
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"Sound quality is so much better, sounds are fuller, clearer, louder and more natural."
Janine Roebuck, opera singer
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"It’s much easier to tell where sounds are coming from, especially in busy spaces."
Janine Roebuck, opera singer
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"If you’re out in public, it can be hard to follow who is speaking, making joining in with conversations almost impossible."
Janine Roebuck, opera singer
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"As a result, you have debilitating concentration fatigue at the end of every day."
Janine Roebuck, opera singer
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"With bilateral implants, I no longer consider myself to be deaf. They have been utterly life-changing and, for me, have broken a generational curse."
Janine Roebuck, opera singer
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"Struggling to hear can be extremely isolating and many people experience anxiety or depression as a result."
Janine Roebuck, opera singer
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"The implants are life-changing. They reconnect you to the world and, most importantly, people."
Janine Roebuck, opera singer
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"Communication is surely the longing of every human heart."
Janine Roebuck, opera singer
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"I also feel safer and more secure having the two implants."
Janine Roebuck, opera singer
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"I am more aware of and connected to what’s happening in the world around me."
Janine Roebuck, opera singer
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"And, if anything goes wrong with one of the implants, I’m not suddenly plunged into a world of total silence."
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Janine Roebuck’s father also had sensorineural hearing loss.
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Janine Roebuck’s grandfather and his siblings also had sensorineural hearing loss.
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The trial will run in 14 hospitals and includes more than 250 adults.
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Trial participants will receive either one (unilateral) or two (bilateral) cochlear implants for comparison.
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Participants in the trial must have become deaf later in life and cannot already have an implant.
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Matthew Smith is an ear, nose and throat surgeon at Addenbrooke’s Hospital.
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Debi Vickers is a speech and hearing scientist in the Department of Clinical Neurosciences at the University of Cambridge.
Matthew Smith, ear, nose and throat surgeon
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"We know from giving bilateral implants to children that it can have a transformative effect on their quality of life and interactions with other people."
Matthew Smith, ear, nose and throat surgeon
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"Through this study, we can offer the same opportunity to adults who have become deaf, and understand the potential added value of bilateral cochlear implants, not just in terms of hearing, but also how they enrich quality of life."
Debi Vickers, speech and hearing scientist
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"Children routinely receive bilateral cochlear implants. These can provide three-dimensional hearing, enabling them to hear more naturally than unilateral, with improved access to sound and better engagement with society."
Debi Vickers, speech and hearing scientist
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"Adults tell us, and I agree, that they should be given the same hearing opportunities as children."
Debi Vickers, speech and hearing scientist
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"In turn, these will result in reduced social isolation, enriched communication, improved mental health, and better overall quality of life."
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Once the trial finishes, it will be submitted to the National Institute for Health and Care Excellence for review.
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Ralph Holme is director of research at the RNID.
Ralph Holme, director of research
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"It’s wonderful to hear just how life-changing this experience has been for Janine, and the impact it’s had on her quality of life."
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