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Chloe is 29 years old and has epilepsy.
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Chloe’s Lamotrigine-based medication is one of hundreds of everyday drugs that are now extremely hard to get hold of in England.
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In the last few weeks, Chloe has not been able to get the right medications and her seizures returned, causing her to fall, hit her head, and leave a scar across her back.
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Confidence90%
Access to medicines in England has deteriorated in recent years.
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People living with heart conditions, stroke risks, eye infections, bipolar disorder and ADHD are among those unable to get the medications they depend on.
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People often leave pharmacies without the medication they need.
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Confidence90%
Shortages are partly caused by surging global prices.
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Confidence90%
The NHS pays pharmacies a fixed price for each medicine it dispenses.
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Confidence90%
Pharmacies are expected to source each drug for the NHS payment amount or less.
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When a drug’s market price rises above the NHS payment, the medication is placed on the government’s price concessions list.
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In April, the price concessions list included 210 named medications, a record high.
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Pharmacy owners are reimbursed at the new price for drugs on the concessions list.
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When market prices rise suddenly above both the original NHS tariff and the concession price, pharmacies dispense medications at a loss, making it harder to maintain stock and increasing the chance of delays or shortages.
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Confidence90%
The Epilepsy Society identified three deaths in the last two years where lack of medication was a contributing factor.
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Pharmacist Akash Patel in Shepperton, Surrey, could not complete a monthly prescription for a patient with epilepsy because some items were not available.
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The pills that Akash Patel could provide would leave the pharmacy out of pocket by nearly £9.
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Pharmacists stock loss-making medicines at lower levels to reduce losses, causing more patients to miss out.
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Since 2017, 1,500 High Street pharmacies in England have shut, with 27 closing so far this year.
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Confidence90%
The number of pharmacies in England is at its lowest level in 20 years.
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Confidence90%
Medicine prices are rising because it is becoming more expensive and more difficult for manufacturers and suppliers to get medicines into the UK.
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Confidence90%
Global tensions have pushed up energy and transport costs, and many medicines rely on oil-based ingredients, making them more expensive.
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Confidence90%
Chris Henry, 49, takes Co-Careldopa for Parkinson’s Disease, and his medication has been added to the government’s concessions list.
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Confidence90%
Chris Henry placed his next order after hearing about the shortages, hoping the medication arrives before he runs out.
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Chris Henry has four children and works full time.
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Venlafaxine is on the concessions list with a reimbursement price of £3.89 while the cheapest purchase price is £5.25.
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Confidence90%
The UK government spends a lower proportion of its health budget on medicine per patient than many neighbouring Western European countries, including France and Germany.
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Confidence90%
Last year, Patel’s pharmacy lost £140,000 on NHS medicines it dispensed.
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The village of Shepperton now has only one pharmacy instead of three.
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Some pharmacists have remortgaged their homes or used pensions to keep their businesses afloat while waiting for reimbursement prices to catch up with costs.
Chloe
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"It's just terrifying."
Chloe
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Confidence90%
"I get panic attacks."
Chloe
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Confidence90%
"In the last few weeks I haven't been able to get the right medications and my seizures came back. I fell and hit my head and have a big scar across my back now from it."
Chloe
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Chloe says she sometimes spends several hours riding a bus searching for the medication she needs.
Akash Patel, pharmacist
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Confidence90%
"It's been getting worse in the last few years but now is the worst I've ever known it."
Akash Patel, pharmacist
Relevance: supporting · Type: quote
Confidence90%
"It's a big loss-making drug so we only ever order small amounts in the hope the price will come down when we order it next."
Akash Patel, pharmacist
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Confidence90%
"And even when I order it, there's no guarantee it will actually come."
Gaurang Patel, pharmacist
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Confidence90%
"Maybe it's time we just gave up as well, our pension has already been swallowed up in losses."
Gaurang Patel, pharmacist
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Confidence90%
"This is a long supply chain and so the war hasn't impacted supplies yet, but prices to make medicines have gone up, and so have transport costs."
Gaurang Patel, pharmacist
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"I'd stockpile if I could, but I don't have the cash flow."
Chris Henry, patient
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"This is genuinely concerning."
Chris Henry, patient
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Confidence90%
"Trying to manage medication for Parkinson's Disease is a nightmare at the best of times, so thinking there is a shortage is incredibly worrying and scary. These medications make my life liveable."
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