Relevance: primary · Type: event
Confidence90%
Medical information of 500,000 participants of UK Biobank was offered for sale online in China.
Ian Murray, Technology Minister
Relevance: primary · Type: background
Confidence90%
Ian Murray said that information of all members of the UK Biobank database was found listed for sale on the website Alibaba.
Relevance: primary · Type: event
Confidence90%
The charity that runs UK Biobank told the government about the breach on Monday.
Relevance: primary · Type: background
Confidence90%
The information did not include names, addresses, contact details or telephone numbers.
Relevance: primary · Type: background
Confidence90%
The information could include gender, age, month and year of birth, socioeconomic status, lifestyle habits, and measures from biological samples.
Relevance: supporting · Type: background
Confidence90%
UK Biobank is a collection of health data offered by volunteers that has been used to help improve detection and treatment of dementia, some cancers and Parkinson’s disease.
Relevance: supporting · Type: background
Confidence90%
UK Biobank has collected whole body scans, DNA sequences and medical records from hundreds of thousands of volunteers for over two decades.
Relevance: supporting · Type: background
Confidence90%
The UK Biobank project has led to more than 18,000 scientific publications.
Relevance: supporting · Type: background
Confidence90%
Participants were aged from 40 to 69 when they were recruited between 2006 and 2010.
Relevance: supporting · Type: event
Confidence90%
UK Biobank said it was investigating the incident and thanked the UK and Chinese governments and Alibaba for their support and cooperation.
Professor Sir Rory Collins, Chief Executive
Relevance: supporting · Type: quote
Confidence90%
“We understand that the existence of these listings, even temporarily, will be concerning to you.”
Professor Sir Rory Collins, Chief Executive
Relevance: supporting · Type: quote
Confidence90%
“We want to reassure you that all the data are de-identified; they do not contain any personally identifying information (such as names, addresses, dates of birth, and NHS numbers).”
Relevance: supporting · Type: background
Confidence90%
The data involved in the incident had been made available to researchers at three institutions.
Relevance: supporting · Type: event
Confidence90%
Alibaba removed the data from its website soon after support from the UK and Chinese governments.
Professor Sir Rory Collins, Chief Executive
Relevance: supporting · Type: background
Confidence90%
Sir Rory Collins said the appearance of the data listings constituted a clear breach of the contract signed by the academic institutions involved.
Professor Sir Rory Collins, Chief Executive
Relevance: supporting · Type: quote
Confidence90%
“They, along with the individuals involved, have had their access suspended.”
Relevance: supporting · Type: background
Confidence90%
The government has been informed that no purchases were made from the three listings on the website.
Prof Naomi Allen, Chief Scientist
Relevance: supporting · Type: quote
Confidence90%
“Ultimately it’s the fault of these rogue researchers.”
Prof Naomi Allen, Chief Scientist
Relevance: supporting · Type: quote
Confidence90%
“They are giving the global scientific community a bad name.”
Polly Toynbee, columnist
Relevance: supporting · Type: quote
Confidence90%
“I don’t think many people will be very worried because that information is anonymised.”
Polly Toynbee, columnist
Relevance: supporting · Type: quote
Confidence90%
“Maybe they could sell details of particular cases, but it won’t be with names or addresses or anything that leads back to particular people. So I don’t think this will rattle all the magnificent volunteers who’ve got in for this.”
Relevance: supporting · Type: action
Confidence90%
UK Biobank temporarily suspended access to its research platform following the incident.
Relevance: supporting · Type: action
Confidence90%
UK Biobank imposed a strict limit on the size of files that can be exported from its research platform.
Relevance: supporting · Type: action
Confidence90%
UK Biobank will monitor file exports daily for suspicious behaviour.
Relevance: supporting · Type: action
Confidence90%
UK Biobank will conduct a comprehensive and forensic board-led investigation of the incident.
Victoria Collins, technology spokeswoman
Relevance: supporting · Type: background
Confidence90%
Victoria Collins urged the government to hold UK Biobank accountable.
Victoria Collins, technology spokeswoman
Relevance: supporting · Type: background
Confidence90%
Victoria Collins described the situation as a profound betrayal.
Ian Murray, Technology Minister
Relevance: supporting · Type: background
Confidence90%
Murray said the data placement on the internet did not occur through a leak or cyber-attack.
Ian Murray, Technology Minister
Relevance: supporting · Type: quote
Confidence90%
“This was a legitimate download by a legitimately accredited organisation.”
Richard Tice, Deputy Leader of Reform UK
Relevance: supporting · Type: background
Confidence90%
Richard Tice described the breach as a China data theft scandal.
Richard Tice, Deputy Leader of Reform UK
Relevance: supporting · Type: quote
Confidence90%
“Can the minister confirm that our generosity actually will not be abused by those Chinese researchers and that UK Biobank should preclude and exclude them for the future, in order to ensure that this state of theft comes with sanctions?”
Ian Murray, Technology Minister
Relevance: supporting · Type: background
Confidence90%
Murray said the tenor of Tice’s question did not fit with the seriousness of the issue.
Ian Murray, Technology Minister
Relevance: supporting · Type: background
Confidence90%
Murray said thousands of Chinese researchers have worked with UK Biobank since 2012 safely and securely.
Prof Elena Simperl, Professor
Relevance: supporting · Type: background
Confidence90%
Elena Simperl said initiatives like UK Biobank are essential in driving innovation in health and life sciences.
Prof Elena Simperl, Professor
Relevance: supporting · Type: quote
Confidence90%
“Too often, the costs of maintaining infrastructure for flagship data stewardship projects like this are treated as an afterthought.”
Graeme Stewart, Head of Public Sector at Check Point Software
Relevance: supporting · Type: background
Confidence90%
Graeme Stewart said a small drop in participation could affect the quality and reliability of research at scale.
Will Richmond-Coggan, legal advisor
Relevance: supporting · Type: background
Confidence90%
Will Richmond-Coggan said de-identified data can still be treated as personal data and that the detailed nature of the information could risk re-identification of participants.
Spokesperson for the Information Commissioner’s Office
Relevance: supporting · Type: quote
Confidence90%
“People’s medical data is highly sensitive information, not only do people expect it to be handled carefully and securely, organisations also have a responsibility under the law.”
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