Relevance: primary · Type: background
Confidence100%
The SocialMS study was a nationwide questionnaire-based study involving 1,039 adults with multiple sclerosis.
Relevance: supporting · Type: background
Confidence100%
Participants in the SocialMS study received care at 68 multiple sclerosis centres in Italy.
Relevance: primary · Type: action
Confidence100%
The SocialMS study asked participants about the impact of multiple sclerosis on education, work, financial resources, and social life.
Relevance: primary · Type: event
Confidence100%
51% of participants in the SocialMS study reported that multiple sclerosis affected their social life.
Relevance: primary · Type: event
Confidence100%
48% of participants in the SocialMS study reported that multiple sclerosis affected their work.
Relevance: supporting · Type: event
Confidence100%
34% of participants in the SocialMS study reported that multiple sclerosis affected their financial resources.
Relevance: supporting · Type: event
Confidence100%
19% of participants in the SocialMS study reported that multiple sclerosis affected their education.
Relevance: supporting · Type: event
Confidence100%
Researchers identified the strongest associations between work and social life and between work and financial resources in the SocialMS study.
Relevance: supporting · Type: event
Confidence100%
People experiencing financial difficulties, being out of work or retired early, additional health conditions, or greater levels of disability were more likely to report impacts across multiple domains in the SocialMS study.
Relevance: supporting · Type: event
Confidence100%
Economic strain and disability were associated with all secondary outcomes examined in the SocialMS study.
Marta Ponzano, Lead Author, Link Campus University
Relevance: primary · Type: quote
Confidence100%
"Our data show that multiple domains of life are substantially affected by MS beyond physical health, particularly social life and work."
Marta Ponzano, Lead Author, Link Campus University
Relevance: primary · Type: quote
Confidence100%
"Importantly, the greatest burden falls on individuals who are socioeconomically and medically more vulnerable, with disability emerging as a key driver of disadvantage."
Marta Ponzano, Lead Author, Link Campus University
Relevance: primary · Type: quote
Confidence100%
"Taken together, these findings highlight the need for a more comprehensive, person-centred approach to MS care."
Marta Ponzano, Lead Author, Link Campus University
Relevance: supporting · Type: quote
Confidence100%
"We do not treat only MS, but the person living with MS."
Marta Ponzano, Lead Author, Link Campus University
Relevance: supporting · Type: quote
Confidence100%
"That means recognising and addressing the impact of the disease on daily functioning, employment, social participation and overall wellbeing, not just its physical symptoms."
Relevance: primary · Type: event
Confidence100%
Almost 90% of participants in the SocialMS study reported receiving some form of social support.
Relevance: supporting · Type: event
Confidence100%
61% of participants in the SocialMS study received practical support from family members.
Relevance: supporting · Type: event
Confidence100%
76% of participants in the SocialMS study received emotional support from family members.
Relevance: supporting · Type: event
Confidence100%
43% of participants in the SocialMS study cited friends as an important source of emotional support.
Relevance: supporting · Type: event
Confidence100%
More than 16% of participants in the SocialMS study reported receiving emotional support and companionship from pets.
Relevance: supporting · Type: event
Confidence100%
Almost 12% of participants in the SocialMS study reported receiving emotional support from colleagues.
Relevance: supporting · Type: event
Confidence100%
Among participants whose social life was affected by multiple sclerosis, 54% reported impacts on relationships with partners.
Relevance: supporting · Type: event
Confidence100%
Among participants whose social life was affected by multiple sclerosis, 46% reported impacts on friendships.
Marta Ponzano, Lead Author, Link Campus University
Relevance: supporting · Type: quote
Confidence100%
"These two findings, which may appear contradictory, actually highlight the dual nature of this domain."
Marta Ponzano, Lead Author, Link Campus University
Relevance: supporting · Type: quote
Confidence100%
"Family and friends are often an important source of support for people living with MS, yet the disease can also place strain on those same relationships."
Relevance: supporting · Type: event
Confidence100%
Participants reporting a greater multiple sclerosis-related burden were more likely to receive support in the SocialMS study.
Marta Ponzano, Lead Author, Link Campus University
Relevance: supporting · Type: quote
Confidence100%
"While this could represent an encouraging finding, future studies should investigate whether support is activated in response to higher levels of need or provided proactively."
Marta Ponzano, Lead Author, Link Campus University
Relevance: supporting · Type: quote
Confidence100%
"A preventive model rather than a reactive one may be more beneficial for individuals with MS."
Marta Ponzano, Lead Author, Link Campus University
Relevance: primary · Type: quote
Confidence100%
"Our findings highlight that the impact of MS extends beyond physical health, affecting social life, employment, financial resources and education."
Marta Ponzano, Lead Author, Link Campus University
Relevance: primary · Type: quote
Confidence100%
"For healthcare systems and policymakers, these results underscore the value of multidisciplinary support services and policies aimed at reducing the broader social and economic burden of the disease."
Marta Ponzano, Lead Author, Link Campus University
Relevance: primary · Type: quote
Confidence100%
"Routine assessment of these wider impacts, together with closer coordination between healthcare and social support services, may help identify unmet needs early and reduce inequalities among people living with MS."
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